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Kacper from Zelechow was born on 18th of May 2005 with congenital skeletal system defect -  PFFD. As a result, one of his legs is shorter.  Nowadays, the difference is 29 cm and it gets deepen. Kacper’s dream is to become a sportsman, play football and run fast. To make the dream comes true, about 200 thousand dollars is necessary for the first complex surgery, which must be held as soon as possible. Unfortunately such amount is beyond the family’s capability, therefore we kindly ask you to JOIN the action and to make a donation or entrust 1% of your tax.

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INFORMATION

Kacper  was born on 18th of May 2005 with congenital skeletal system defect -  PFFD, very rare disease (approximately 1 : 50 000). His right leg is shorter than the left one for about 29 cm, it  does not grow and develop properly. The difference increases from year to year. Kacper moves thanks to prosthesis which compensates the difference. The prosthesis needs to be changed once a year. Our dream is that our son could stand on equal legs. Thanks to the parents of the children, who are already in the treatment, we have contacted with dr Dror Palley from West Palm Beach (Florida, USA), who has a great experience in treating children with PFFD (www.lengthening.us/contact_me.html).

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In April dr Paley is going to arrive to Europe to Helsinki, Finland. At that time, a medical consultation of our son will take place. For us it is a great facilitation, but it is still a significant cost. Surgeries have to take place abroad. The first as soon as possible.  In total, there are going to be several complex and expensive surgeries. It is the only chance to cure and to save our son from disability. Cost of the surgery equals to approx. 200 thousand dollars. Unfortunately such amount is beyond the family’s capability, therefore we ask people of a great hart for help and joining our action. We encourage you to make a donation of any amount or entrust 1% of your tax.
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